Genetic testing company 23andMe has filed for Chapter 11 bankruptcy, raising concerns about the sale of millions of users’ DNA data. Privacy experts and advocates are worried about the potential consequences of this sale, as users have no say in where their data will go. California Attorney General Rob Bonta has warned users that their data could be sold, providing instructions on how to delete genetic data from 23andMe and revoke access to third-party research studies.
DNA data is highly sensitive and its primary use for mapping predisposed genetic conditions is information many prefer to keep private. Security experts warn that once someone’s biometric data like DNA is compromised, there is no remedy as it cannot be changed. While 23andMe claims there will be no change to how they store data, there is little federal regulation on genetic data held by tech companies, as opposed to those held by medical professionals under HIPAA regulations.
The company has previously faced security breaches, with a hacker accessing data of 6.9 million users in 2023. This incident highlighted the risks associated with sharing genetic data with a corporation. Georgetown Law’s Emily Tucker emphasized the importance of understanding the risks involved in giving DNA to a company and how easily personal information can be bought and sold without consent. This situation serves as a wake-up call for Americans about the potential consequences of sharing genetic information with corporations.
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